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  #1 (permalink)  
Old 09-12-2011, 12:17 AM
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Constant missed heartbeats

I have constant missed heartbeats. Please understand from the outset, that when I say constant: I MEAN constant. My heart will go on average 6-8 normal beats MISSED BEAT normal beat, it can be every other beat when really bad and on a 'good day' go as long as 30 seconds before a missed beat. In simpler language...I miss about 10,000 beats a day. This has been going on for 3 years. I called an ambulance when it first started, and although the EKG did catch the missed beats I was told they're benign and something I would have to 'get used to'. I arranged to see a specialist, was fitted with a 24 hour monitor, had an EKG and echocardiogram. He told me (to my indignation) that I have 'benign ectopic heartbeats'. I mentioned the fact they're permament and surely this can't be normal, he simply said what ER told me...that it's something you have to learn to live with. 3 years later I feel like a walking corpse. I am aware of my heartbeat every waking second and I know this isn't benign. I am profoundly weak and tired, and frequently dizzy. I want to ask if I can have cardioversion (shocks) or anti-arrhythic drugs tried, yet they seem evasive to intervention in this manner. But I feel what I need first is a new doctor.
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Old 09-12-2011, 08:27 AM
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My cardio told me when the PVC's and PAC's are bothering you to a degree you feel that you are not living a normal life, that you should be put on arrithymia medicine. These won't kill you, but if it is making you suffer and you feel as if your life is being controlled, try the medicine. I went on Paxil, and it really helps mine. It sounds like you have what i have, constant adrenaline rushes in your body which is a huge trigger of PVC's. The Paxil calms these adrenaline rushes. I am having them constant this morning. Skipping every fourth beat, but the more I pay attention to them, the more they bother me. So mind over matter, I ignore them--THEY WILL NOT RULE ME!! Then they disappear and I get relief. Hang in there. Message me if you ever need to talk.
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Old 09-12-2011, 09:31 PM
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I know how you feel, I've been in this situation too! It really does make a difference if you have an understanding doctor who is willing to listen and accept how much these can really affect your life. It's true that the more you feel, the more you have, and you end up in a terrible vicious cycle! Try and remember that these won't harm you, no matter how many you have, and try and take it easy during bad times, relax and reassure yourself - I know it's easier said than done, but after my doctors told me in no uncertain terms that these wouldn't hurt me, I did notice that I was more able to relax, and consequently felt less. That isn't to say I don't feel any anymore, but with a combination of medication (beta blockers and SSRIs) and reassurance I feel a lot more able to live my life than I did a couple of months ago.

Hope that helps! <3
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Old 09-18-2011, 01:40 PM
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I couldn't agree more with your already comments. It is SOOOO hard to accept these things but they are very benign and you will be ok. Reassurance can be a huge help, I hope you can relax a bit my friend xoxox
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Old 09-19-2011, 06:52 PM
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I would change your doctor. If you really are getting that many ectopics, you really do need a doctor who is sympathetic and will investigate further. These are by the way extra beats not skipped beats. You should at least be diagnosed with exactly what type of ectopics theses are. There are drugs and treatments which can help even vure certain types of arrhythmias. @ Kandra, Paxil is an SSRI not an anti arrythmic. Anti arrythmics can only be used for certain types of arrythmias and should not be taken lightly. If you are having that many a day and feeling dizzy you are certainly not asymptomatic and need some type of treatment. Hope you are able to find help.
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Old 10-12-2011, 08:27 PM
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Kandra I'd just like to tell you, SSRIs are good at the start, but in the end antidepressants induced PACs I still live with to this day. The combination of Zoloft and Amitriptyline gave me sleep disorders and heart problems I still am living with. I am not imagining this because I've retried them 4 times in my life (even with doctor assurance they don't do long term damage) only to suffer from sleep and heart problems right after because of them. The sleep problem was induced by Zoloft, but it can go away to a good degree over time, but I've been fighting it for years. But the heart problem has remained since the day I increased my dose of amitriptyline too fast. That day my PACs were born. Just to let you know, if you do start developing sleep problems it's the Paxil. And please I advise everyone to stay away from tricyclic antidepressants like Amitriptyline.
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Old 10-19-2011, 12:53 AM
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Hi,

I have seen my doctor again who is arranging for me to attend a local heart clinic, where hopefully I will have another 24 hour monitor, I've already had bloods done but not had results yet.

I am still missing about every 6th beat. 2 nights ago I had a feeling of pressure in the left of my chest (not painful as such but very unpleasant). My breathing and heartrate became very rapid and I almost blacked out. My body seemed to react with an adrenaline rush and within a minute it was gone. The odd feeling in my chest has come back (faintly) for a few seconds at intervals, but it seems to go.

I have had many 'panic attacks'* before and know them inside out, I can tell you this was something new and it was not a panic attack. The only thing making me doubt it was some sort of heart attack was how incredibly fast the whole thing was. That doesn't mean it wasn't though.

I intend to ask my doctor about an ablation proedure, which I've read can cure these things for good. I don't care how much it costs because my life is being destroyed, there's something genuinely wrong here. I'm seeing "benign" more as a way of saying "We don't know and/or care".

I have been on atenolol years ago for blood pressure but stopped due to asthma. I use my inhaler only a couple of times a day now though and it's a lot better than it was, so I might be able to use them again at 25mg, though I sure as hell remember 50mg was bad for my breathing.

As for SSRI's...sorry not touching those things again! All I remember about prozac and citalopram is they caused very irrational thoughts that I had never experienced prior to those drugs. They stopped when I discontinued. I consider SSRI's very dangerous.

One thing that I have aways found interesting over the years is doctors that I called to my house on emergencys when I thought I may have been havng a heart attack where the only ones who have said to me they think something real is causing this. My own doctor and 'specialists' just sing from the song sheet. My faith in them is gone and I feel they are palming me off.

Everything else is still the same. I have no energy, am profoundly weak and frequently dizzy. I am weak from when I wake up, sleep does nothing for me. I told my doctor all this (again) and he seemed unconcerned. When he listened to my chest he said "There was a good run without any ectopics there", whatever that means, he never clarified.



*the footnote is basically because 'panic attacks' have always seemed like a throwaway diagnosis to me. I had them for years before my arrhythmia became blatantly obvious. These 'attacks' could just as easily have been early warning signs.

Last edited by Dyeazzypam; 10-19-2011 at 01:58 AM. Reason: typos, more info
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Old 10-19-2011, 09:25 AM
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I think when your doctor said "There was a good run without any ectopics there", he just meant when he listened to your heart it was beating normally with no ectopics. I hate to point this out, but ablation doesn't cure ectopics unless they're part of something else (like SVT) - if you just have benign ectopics, there is no cure, and it's also a VERY expensive procedure - I looked into having it done privately here in the UK and the hospital I spoke to had never heard of anyone having it done - probably because it costs £16000! If you're in the US that's at least $24000! (Maybe that's normal there, idk, but it was certainly prohibitive to me. XD)

Anxiety and panic can develop different symptoms over time so it's not out of the question, but yeah the feeling in your chest sounds scary I hope they can do some more tests and find out it's nothing serious!
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Old 10-19-2011, 10:12 AM
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I had the same experience with SSRIs, really extreme weird thoughts and impulses.
Elyndys, Curing eptopics depends on the foci. Even if there are mutiple foci the more dominant foci can be ablated and if they are a single focus they can be possibly cured. I have had 2 attempted ablations and was offered another one for PVCs but have chosen not to do it. I am from UK but live in US and here they are normally covered by insurance.
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Old 10-19-2011, 03:43 PM
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I do take an SSRI and never had a problem, I am very happy to have them for my Panic. Everyone is different and our bodies all handle it differently.

I have heard that albation is a 50-50 shot for PVCs, all depends on the location etc. I am not an expert though but am so sorry you are going through this. I can truly relate to your fear my friend.
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