[jphilly76]

Hello Skipping Hearts!

Technology is an amazing thing, and this site is proof. Here we all are - the unlucky few - spread out over the globe but this site offers a constant opportunity for us to get together and support each other through these difficult issues.

Another opportunity presented itself recently, and it's really helped me out A LOT! I was really freaked out one night, panicing as usual about the PVC's, and I posted on my Facebook page via iPhone App that I hated heart palpitations. Within minutes, three or four of my friends that I had no idea struggled with this posted comments to my "status update".

As we all know, spouses of we with the PVC (hahaha-that rhymes) also have a pretty tough time as they don't really get why if the doctor says we're fine, we don't just get over it. Last week my wife and I got together with a friend who's having PVC's with Tachycardic episodes for nearly five years and her relationship with her partner has been really taxed as a result.

We ended up having dinner and talking pretty openly about our PVC's from both vantage points, and I felt like I felt better knowing someone locally (who I now at least text every day) who struggles with these issues and my wife got to talk with someone who understands her struggle with all of this.

While we may not all have local friends we can talk to, I feel like we may be able to help each other via FB chat, or messages and establish a sort of live support scenario for the people on this site. I don't know if Skipping hearts wants to set up a group FB page, or we all just "Friend" each other, but I think there might be some good oportunities there.

I have an iPhone with Facebook, and get updates as they happen. Pretty much every mobile phone has a FB application available, so keeping up on the run is pretty practical. In any case, if anyone else thinks this might be a good idea, my username is jphilly76 and feel free to friend me! It's just an idea. Thoughts?

-Justin Brown

[Casper664]

I think this is a great Idea I would be down!!! i'll try and find you on facebook...

~Mary Payne~

I think it'd be cool to have a skipping hearts page on FB too!! maybe get the word out to those on FB who may not know of this site!

[jkfrench]

a skipping hearts facebook page is something I've wanted to do for a while. If we all join the "group" all of our friends that can relate will come to the site. We want to drive traffic to the site, so this would be the best way to go.
Jodie

[poohbear2026]

I would love to stay in contact with you all on facebook.

Anita Gaffney

[jphilly76]

I think the FB page is an excellent idea. Today, most bars have a page, so I was really surprised to find that there wasn't one for Skipping Hearts!?! I'm not sure who owns the site, but I think it would be an invaluable resource - at te very least, we would all get "updated" if someone was freaking out enabling us to help if possible.

-Justin

[Susie]

That is an awesome idea. Unfortunatley, I no longer have it, it was giving me a lot of trouble, and since I just got a new lap top, I did not want to have anything like a virus or trojan to get into it.

If I ever get back on, I will look you all up.

[gillespiefive]

Michelle Sanchez-Gillespie....Now I'm gonna have to friend request you guys!!!!

[Jeff]

Jodie and I are sorta partners in the site. I like the idea - I've never set up a page like that before, so give me a bit to figure it out.

[sensitiveheart]

I'd be up for a Facebook page. If I don't watch myself, I find I can spend a good portion of my day on there.

[Mikefrom LI]

Sounds good to me also. This sight helps me so much I don't know what I'd do without it. Ive read it for so long I just decided today to join. Thanks everyone.