[Richelle]

Ok so i am sick of being told that i am NOT feeling what i am describing...I get a flutter feeling immediately followed by a feeling of loosing my breath and then horrible panic sets in. IT scares the life out of me....then i sit around waiting for the next one fearing i will die if it doesnt stop. I have seen my primary care doc who had told me everything is normal but i insisted on seeing a cardiologist. they did stress test...holter monitors so many i have scars from the pads...ekgs..echos...heart cath..and they all say i have a normal rhythm with occasinal fast rate.
Have also seen the electrophysiologist doc and he said the same thing i am on a beta blocker and i still feel these things multiple times a day and it is making me feel like this is my last day on earth. I am even afraid to go anywhere alone for fear i might have one of those and not recover.
I am so at a loss...this has really taken a toll on me physically and mentally
I am hoping to find others out there that goes through what i do

thanks for listening

[DaniRae]

I have flutters, just had one the other day and it scared me. They I had a hard PVC reset it. I am not sure if it was short burst of SVT or maybe some PACs. Was your fluttering caught on your monitor?

[Richelle]

Yes and my electrophysiologist said this

"Did review the Holter this AM. There were NO arrhythmias to correlate with your palpitations. It is all normal rhythm, sometimes faster than others"

and that didnt really tell me anything to help ease my mind..so i called and asked what else the monitor showed and he said all NORMAL RHYTHM

[DaniRae]

So it sounds like SVT if it was normal just faster then others. I do believe it can feel like flutters as well. Jodie would be a great one to comment as she has lived with SVT for years. So that short burst could be what you are feeling.

[Richelle]

I have these flutters alot several times a day and my docs are all saying its "normal" i am having a hard time buying this. I feel like they are not even looking in the right places anymore. I hate even to go to the docs because i know it will get me no new answers everyone keeps saying "normal rhythm" but they arent the ones trying to live with this. If it was them i would gaurantee they would want answers. I am tires of living in fear of having the "big one" I just want to be free to enjoy my life and be happy.

I tend to panic alot AFTER these episodes and that is a few times a day I cry alot also and get angry too. This is not living a happy life this is what i call barely exisiting...
soooo sorry for the long replys...it is just so nice to be able to vent to someone that knows

[DaniRae]

We all totally understand here what you are going through. Having something not right with your heart is huge. And when docs just "blow us off" its so frustrating. But I have learned that they "blow us off" because they are right. These things will not kill us. SVT from what I understand is a rather normal rhythm. Just a faster one and it is totally harmless.

Most of us here also suffer with anxiety and panic. Especially after the funky beats. I had a bad upset 2 days ago and thank God for the people here to make me feel ok.

You can come here anytime, there is usually always someone on who you can chat with and will help set you at ease. I know this is scary for you and i am so sorry you are going through this.

Did your doc recommend any kind of beta blockers to slow your HR down?

[DaniRae]

Oh I see now you are on a beta blocker.... Maybe they need to try a different one, maybe the one you are on just is not working for you

[dr461]

Originally Posted by Richelle

I have these flutters alot several times a day and my docs are all saying its "normal" i am having a hard time buying this. I feel like they are not even looking in the right places anymore. I hate even to go to the docs because i know it will get me no new answers everyone keeps saying "normal rhythm" but they arent the ones trying to live with this. If it was them i would gaurantee they would want answers. I am tires of living in fear of having the "big one" I just want to be free to enjoy my life and be happy.

I tend to panic alot AFTER these episodes and that is a few times a day I cry alot also and get angry too. This is not living a happy life this is what i call barely exisiting...
soooo sorry for the long replys...it is just so nice to be able to vent to someone that knows

It is normal. I get the same thing frequently, so worry not. If the doctors tell you it is normal, trust them. My cardiologist says that 70% of his referrals are PVCs and PACs and that the conditions are harmless. So, while it is scary, it isn't clinically significant. Try and relax--easy to say, hard to do. This is coming from a veteran PVC person.

[Richelle]

Thanks so much i am going to work on trying to ignore the symptoms but it is very hard i have been trying for so long sometimes i feel like i am smacking my head against the wall...I really appreciate the reassurance from you all and i am sure i will become a frequent flier in here..i am looking forward to getting to know you all and having an extended network of support
No one knows how it feel unless you have or are going through it

[DaniRae]

I couldn't agree more... people really don't understand unless you have been there and done that.... they think it's no big deal but to us, it can control our lives.

And you are more then welcome, we are so happy to help!